Cauda equina update – final edition (hopefully!)


Four years ago I’d had one of those life-changing events that you read about on Facebook.  I’d just undergone emergency surgery for cauda equina – one of my discs had slipped out of place in my spine and was crushing my spinal cord. Fortunately it was caught early and I was rushed in for emergency surgery.
After a week in Derby Royal Hospital, I was discharged from hospital and began the slow rehabilitation back to normality.  Walking was the first battle I won, with nerve damage to the muscles/skin down the back of my legs I had to walk with a stick. A large patient German Shepherd got me walking again and whilst I have reduced sensation down the back of my legs/feet I walk miles, the same as before my condition started.
The second big change was learning to self-catheterise.  The first few times I did this I felt like I was going to pass out (if you’ve seen the length of a male catheter you might appreciate why!) but I learned to do it quickly at home and at work (who had special equipment installed at work).  It’s been a year now since I was discharged from urology as my nerves had regenerated sufficiently that I no longer needed to use the catheters (saving the NHS around £1.50 per visit to the men’s room!)
I still have a rise and fall desk at work but very rarely need to use it in the upright position, and I have an amazing memory foam seat that prevents backache (and it drives me mad when anyone touches the myriad of levers on the underside of the chair as I don’t know what most of them do!)
So why the update – I still get lots of messages from people who have suffered from some kind of spinal/back trauma and either suffered cauda equina or something similar.  I know that your recovery might be slower than mine, or may take a different route but don’t give up.  Hang on in there and keep doing the things you want to, it will get better!
Follow my cauda equina history here

Author: Rob Butler

Ex-science teacher, ex-school leader and full-time geek.

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